Sólo Quedan 29 días para el Día Mundial de las Enfermedades Raras

Queridas Asociaciones:

Quedan 29 días para el Día Mundial de las Enfermedades Raras y desde FEDER os queremos dar las GRACIAS. Ya hemos recibido la información de algunas asociaciones sobre actividades enmarcadas en el Día Mundial de Enfermedades Raras. Desde FEDER daremos difusión a todas vuestras acciones. Unidos, vamos a lograr que el mes de febrero sea el mes de la esperanza por las personas con enfermedades raras.

Queremos seguir animándoos para que os unáis a esta Campaña de Esperanza. Os contamos cómo hacerlo:

1)   MAREA DE LA ESPERANZA –Organiza un acto de Sensibilización por el Día Mundial de las Enfermedades Raras: ¿Tienes un acto programado para el mes de febrero? Te invitamos a que lo enmarques dentro del Día Mundial. Es muy fácil, tan sólo incluye el logotipo del Día Mundial en el material del acto y súmate a la marea de esperanza – Pincha aquí para más información

2)   Descarga el material de Campaña: FEDER pone a tu disposición todo el material de campaña de manera Online – ¿Te gustaría que tu firma de correo fuera del Día Mundial? ¿O poner un banner en la web de tu asociación del Día Mundial? Te invitamos a que visites su zona de Descarga de Material de Campaña pulsando aquí.

3)   Accede a la web de FEDER y conoce toda la información por el Día Mundial– www.enfermedades-raras.org

4)   ¿Tienes alguna duda?¿Quieres contarnos que vas a hacer por el Día Mundial?

Fuente: Dpto. de Comunicación de FEDER  –  comunicacion@enfermedades-raras.org

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  244. Phantom takes second spot in Apple’s US App Store utilities category

  245. Phantom takes second spot in Apple’s US App Store utilities category

  246. Phantom takes second spot in Apple’s US App Store utilities category

  247. Phantom takes second spot in Apple’s US App Store utilities category

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  274. When I initially commented I clicked the -Notify me when new feedback are added- checkbox and now every time a comment is added I get four emails with the identical comment. Is there any way you can remove me from that service? Thanks!

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